Why this site?
In May 2011 our son was born, he has BPES. Since we were not familiar with the syndrome we searched the Internet for information and we had several conversations with surgeons and specialists.
At the right column you can find links. Link titles are in Dutch or English, but most links are linked to English websites.
If you want to add content to the site, e.g. a link, a personal story, or a photo, or if you have a comment, please feel free to comment at that part of the site or contact us by sending an email or using the contact form.